How dangerous could thalassemia be if there is never a cure found, if there is no ability to make blood or iron,because of the disease then how dangerous could this be.Why is the government not funding this they,should be spreading the word about it?

I am going to write about the struggles my family has been through with my adopted sister. She has a rare blood disease called thalassemia, she is the only out of her sibilings that has it. We have had to go back and forth to the hospitial for her to go get iron and blood. She has been to MUSC, and has had mayjor surgerys but they still have not solved the problem. She also has real bad nose bleeds. She had a baby a while ago and now it seems like she is fine no problem what so ever except, the nose bleeds.