Annoted bibliography

Patients suffering from β-thalassemia immanently,  present a

Relatively severe anemia, which is usually not transfusion-dependent, you can also not catch the signs of thalassemia all of the time. A case in 1973 involved a man who had no prior illnesses, ended up being diagnosed with thalassemia. This also showed how easily thalassemia could be misunderstood and not caught on to. It supports my topic good because most doctors do not know much about thalassemia

Citations

Pubmed Health, . "Thalassemia." Pubmed health. A.D.A.M. Medical Dictionary, 2012. Web. 29 May 2012. <http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001613

Hemoglobin, 34(5):505–508, (2010)

Copyright © 2010 Informa Healthcare USA, Inc.

ISSN: 0363-0269 print/1532-432X online

DOI: 10.3109/03630269.2010.509230

Brown, Meldon. “My Blog Survey.” Survey. 12 March 2012.

"Prognosis of Thalassemia ." www.rightdiagnosis.com. Health Grades Inc, 2012. Web. 14 May

2012. <http://www.rightdiagnosis.com/t/thalassemia/prognosis.

"Thalessemia." Pubmed health. A.D.A.M. Medical Dictionary, 2012. Web. 14 May 2012.

<http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001613

_             W. S. Maney & Son Ltd 2010

Received 15 January 2010; accepted 6 April 2010

DOI 10.1179/102453310X12719010991821 Hematology 2010 VOL 15 NO 6

Essential questions

  1.How do you think the government could spread the awareness about thalassemia?

2.      What do you think are some effects of thalassemia?

                                

3.      Have you ever known somebody with thalassemia?

4. How does Thalassemia effect the body?

5. How can the CDC spread awarness about Thalassemia?

Arguementative essay

Maxx Brown

First Block

5/9/12

Why is there so little public information on Thalassemia, and who is responsible for disseminating it?

Why does the CDC not take Thalassemia serious like other disease such as Aids, Cancer and sickle cell anemia? It affects people’s lives just as greatly as Aids, Cancer, and Sickle cell. Thalassemia puts many people in danger, and many doctors are clueless to what Thalassemia is. Nevertheless, the CDC is not spreading the word on how to treat Thalassemia; I think that they should consider this disease dangerous. Anemia, leg ulcers, and low iron are major compilations for Thalassemia and they can be very deadly.

  Thalassemia, a blood disease that happens all over the world, which all starts  by a mutation in gene coding that, alters protein output. There are two types of Thalassemia Beta and Alpha. There are 23 known mutations for Alpha Thalassemia, but for beta, there are over 200 known mutations. Beta Thalassemia contracts through heterogeneous genes. Thalassemia mostly affects the people in the Mediterranean region, parts of north and West Africa, the Middle East, the Indian subcontinent, Southern Far East and Southeastern Asia, together composing the so-called Thalassemia belt. In western countries, Thalassemia mostly affects individuals whose ancestries are traceable.

Awareness for thalassemia needs to happen, thalassemia is not just a disease but it can lead to depression. My sister who has thalassemia was in a state of depression just from being in and out of the hospital, which causes stress for the patient. If the CDC spreads awareness about thalassemia maybe, some doctor could find a cure for thalassemia. So why does the CDC not spread information because it is not a more popular disease.

I can prove that there is a lack of information for thalassemia, as I observed the survey results it really showed me that know body knew about thalassemia. Only one person that I talked to had information about thalassemia, but he used to work in the medical field. My survey asked if they thought that thalassemia should be talked about more and all of the survey takers said that it should be talked about more.

Thalassemia will continue to increase and in my opinion will become a major problem for years to come, but if the CDC does not spread awareness around then there will be problems. There is nothing different with other diseases such as aids, and cancer there is just more of an occurrence of the other diseases. However, study’s say that there will be a major increase in the occurrences of thalassemia in the next twenty years.

Should the CDC spread more awareness or should they leave the disease under the radar. Just from a personal standpoint, thalassemia can really be a horrible disease, but still to this day people fail to realize it is. This is my belief that thalassemia should be considered a deadly disease and that it should be thought more about. The CDC should spread the awareness to stop all of this chaos.

Graph

This graph shows how the amount of spending for the heart and lung institute has increased over the years and has showed a increase in research.

Questions

1.      Do you know what thalassemia is?

                            Yes or No

2.      How do you think the government could spread the awareness about thalassemia?

3.      What do you think are some effects of thalassemia? (check which effects you think)

                                

Ability to not make Blood _

Ability to not make iron_

Weight Loss_

Do you think it could lead to cancer_?

4.      Have you ever known somebody with thalassemia? (Family, Friends, or associates)

5.      From a scale of 1 to 10(with 10 being the highest and 1 being the lowest) order this disease in which one is more deadly?

Cancer_

Aids_

Leukemia_

Turrets syndrome_

Bipolar_

Thalassemia_

6.      Now that you know a little about thalassemia do you care about it?

7.      Thalassemia is a disease that does not allow you to make blood or make iron how do you feel about that?

8.      There is suppose to be an increase in the cases of thalassemia, what do u thinks the government will do to find a cure?

9.      If the government does not do anything for thalassemia will you are willing to take action towards it? Why or why not.

10.  On a scale from 1 to 10 how dangerous do you think thalassemia is now?

Meldon Brown

Ms.Mckoy

English 2-1^st Block

9 March 2012

Hypothesis:

People really do not know about Thalassemia what I want to know is that, “if more people learn about thalassemia will there be more of awareness for the disease, and what would be the best ways to get awareness out there? From, my research now I cannot tell that it is not much info about thalassemia, I get most of my information from my sister. I also want to know “What are the effects of thalassemia on life, can it lead to emotional issue’s From Being inside the hospital many times. My survey questions targeted my first question. I think they will respond well in a positive way, which would cause them to take action.

Context:

My target audience are young people from 19-35.I decided on this group because I feel that they need to be educated about it, if they spread the word to younger and older people. My data is reliable it has one major pattern nobody known is what thalassemia is. My survey questions are not biased; I just think people do not get the questions. I did have to change questions, so my survey could be useful.

Result: Figure 1

1.      Do you know what thalassemia is?

                            Yes or No

2.      How do you think the government could spread the awareness about thalassemia?

3.      What do you think are some effects of thalassemia? (check which effects you think)

                                

Ability to not make Blood _

Ability to not make iron_

Weight Loss_

Do you think it could lead to cancer_?

4.      Have you ever known somebody with thalassemia? (Family, Friends, or associates)

5.      From a scale of 1 to 10(with 10 being the highest and 1 being the lowest) order this disease in which one is more deadly?

Cancer_

Aids_

Leukemia_

Turrets syndrome_

Bipolar_

Thalassemia_

6.      Now that you know a little about thalassemia do you care about it?

7.      Thalassemia is a disease that does not allow you to make blood or make iron how do you feel about that?

8.      There is suppose to be an increase in the cases of thalassemia, what do u thinks the government will do to find a cure?

9.      If the government does not do anything for thalassemia will you are willing to take action towards it? Why or why not.

10.  On a scale from 1 to 10 how dangerous do you think thalassemia is now?

Data analysis:

  A pattern that I noticed from figure 1 is that not many people know about thalassemia. They have no clue at all, but the survey really gave them some knowledge it caused them to want them to know more about the disease and really wonder why the government does not spread awareness. My results also showed me that my survey does not target any specific age group because all of them were clueless on the subject. When I asked the question on if they care about thalassemia, on a scale from one to ten with ten being the worst, they were concerned but there were not many 10’s.

Conclusion:

  In my opinion I think that my hypothesis was proven correct I did raise some awareness about thalassemia, from just the surveys, and I think they want to know more about the disease I’m just going to keep giving awareness and spreading news about it. For my second question it was not really answered they really did not know all that about the topic so that question was not answered.

I am going to write about the struggles my family has been through with my adopted sister. She has a rare blood disease called Thalassemia.She is the only one in her family to have it. Every 3 months she has to go to the hospitial to get iron and blood. She also has real bad nose bleeds for no reason, but she has had a baby and since then it seem like she has been perfect except for some nose bleeds.

How dangerous could thalassemia be if there is never a cure found, if there is no ability to make blood or iron,because of the disease then how dangerous could this be.Why is the government not funding this they,should be spreading the word about it?

I am going to write about the struggles my family has been through with my adopted sister. She has a rare blood disease called thalassemia, she is the only out of her sibilings that has it. We have had to go back and forth to the hospitial for her to go get iron and blood. She has been to MUSC, and has had mayjor surgerys but they still have not solved the problem. She also has real bad nose bleeds. She had a baby a while ago and now it seems like she is fine no problem what so ever except, the nose bleeds.